There are 4 factors that we feel prevent women from receiving adequate care

 

One: Lack of awareness amongst the general public

176 million women globally are affected by Endometriosis

1 in 10 women in the US are living with the disease; many struggle in silence

Treating Endometriosis costs the nation an estimated $119 billion annually

 

two: Misinformation amongst medical professionals 

The average time between symptom onset and diagnosis is 10 years

Hysterectomy is often presented as a cure, despite the fact that current medical literature proves it to be an ineffective treatment

Hormone suppression is highly regarded as an acceptable treatment of the disease itself, when in actuality, it only masks the symptoms

Despite statistical evidence that shows women who undergo excision surgery have better long term outcomes, many OBGYNs do not acknowledge excision surgery as the gold standard of treatment

There is a general lack of surgical skill to properly perform excision

 

three: LACK OF GOVERNMENT FUNDING

The National Institute of Health (NIH) had a budget in 2016 of $32.3 billion, yet Endometriosis only received $11 million, and will receive the same minimal funding in 2017

The amount of funding received for Endometriosis is much smaller when compared to other diseases that affect close to the same number of people

 

four: LACK OF INSURANCE COVERAGE

Despite current research and outcomes, excision surgery is viewed as an investigational service by many insurance companies

No incentives exist to improve quality of treatment because endometriosis specialists are reimbursed the same as regular OBGYNs

An Endometriosis specialist who performs a 4 to 6 hour excision surgery will receive the same reimbursement as a non-specialist who spends 30 minutes to an hour, using a less successful surgical technique such as ablation or fulguration

 

IMG_6230.JPG

"The Endo Co is very dear to me, because I was diagnosed with endometriosis 4 years ago. Their cause is a great way to spread awareness about the disease."

Jyotsna Shankar, 30

San Francisco Bay Area, California