In the simplest terms, endometriosis is tissue similar to the lining of the uterus that is found outside the uterus, on other parts of the body. This rogue tissue creates lesions that become inflamed, bleed, and break down causing pain, scar tissue, and inflammation. Even though it’s mostly found in the pelvis, it can also be found on places like the bladder, bowels, appendix, diaphragm, and even lungs.

As a non-profit, every effort The Endometriosis Coalition makes to raise disease awareness, promote education, and increase research funding is centered around our guiding principles:



We pride ourselves in actively acquiring the knowledge needed to better understand how to help those battling Endometriosis


We strive to provide access to information that leaves women feeling confident and knowledgeable in understanding this disease


Living with Endometriosis ourselves, we understand that change will not take place overnight. We are committed to creating true and lasting change despite the obstacles we may face


We aim to positively influence the lives of, and provide hope to those who are battling Endometriosis


Hey Girl: Pain Is Never Normal

By: Jenneh Bockari-Rishe for Healthline

How I Empower Myself, and Others, to Take Control of Endometriosis

By: Natalie Archer for Healthline

What Living With Endometriosis Is Really Like

By: Meghan Connolly for Betches Media

The 3rd hour of TODAY welcomes registered nurse Jenneh Bockari-Rishe , co-founder of The Endometriosis Coalition, as she discusses her tough medical journey and eventual diagnosis with endometriosis, a disorder that affects one in 10 women worldwide. She's joined by Dr. Iris Orbuch, author of "Beating Endo" and director of Advanced Gynecologic Laparoscopy Center.


There are 4 factors that we feel prevent women from receiving adequate care


One: Lack of awareness amongst the general public

176 million women globally are affected by Endometriosis

1 in 10 women in the US are living with the disease; many struggle in silence

Treating Endometriosis costs the nation an estimated $119 billion annually

two: Misinformation amongst medical professionals 

The average time between symptom onset and diagnosis is 10 years

Hysterectomy is often presented as a cure, despite the fact that current medical literature proves it to be an ineffective treatment

Hormone suppression is highly regarded as an acceptable treatment of the disease itself, when in actuality, it only masks the symptoms

Despite statistical evidence that shows women who undergo excision surgery have better long term outcomes, many OBGYNs do not acknowledge excision surgery as the gold standard of treatment

There is a general lack of surgical skill to properly perform excision surgery


The National Institute of Health (NIH) had a budget in 2018 of $37.3 billion, yet Endometriosis only received $7 million

The amount of funding received for Endometriosis is much smaller when compared to other diseases that affect close to the same number of people


Despite current research and favorable outcomes, excision surgery is viewed as an investigational service by many insurance companies

No incentives exist to improve quality of treatment because endometriosis specialists are reimbursed at the same rate as regular OBGYNs

An Endometriosis specialist who performs a 4 to 6 hour excision surgery will receive the same reimbursement as a non-specialist who spends 30 minutes to an hour, using a less successful surgical technique such as ablation or fulguration


Endo Info Day LA 2019

Together with EndoWhat? we had the pleasure of co-hosting a day for those living with endometriosis and their support systems to learn more about endometriosis! The event involved a screening of the documentary EndoWhat? followed by an expert endometriosis and pelvic health discussion panel including:

Iris Orbuch, M.D. - Endometriosis Excision Surgeon

Joshua Gonzalez, M.D. - Sexual Medicine

Jandra Mueller, D.P.T. - Pelvic Floor Physical Therapy

Mao Shing Ni, D.O.M - Chinese Medicine

Amber Murphy, LCSW - Pain Therapy

Jenneh Bockari, RN - Patient Advocate

Thank you to EndoWhat?, WeWork, Lumenis Gynecology, and our generous sponsors for making this day possible.

Follow us on Instagram at theendo.co to learn and get connected!





Jenneh Bockari-Rishe has been a Registered Nurse for 11 years, working in many different specialty areas such as trauma, kidney transplant, oncology, and leukemia/bone marrow transplant. It took over 4 years, but Jenneh's medical background gave her the knowledge and skills to navigate how to finally get good care after she was diagnosed with endometriosis. With her love for healthcare, education, and teaching, she felt inspired to use her abilities to help other women understand the disease better. One way she does this is by contributing endometriosis and working as a medical reviewer for Healthline.

Jenneh is originally from New Jersey, but has lived in in Los Angeles for the last 8 years. In her free time, she loves running, writing, and spending time with her incredibly supportive husband, family, and friends. When asked why she felt so passionately about starting the The Endometriosis Coalition with Natalie, she says "endometriosis is criminally under researched and horribly misunderstood, and I want to be a part of changing that, sooner rather than later."

Follow Jenneh on IG @lifeabove_endo





Natalie's story is a bit of an unconventional one, but it has all lead led her to where she is today. She began by studying Psychology in Australia (taking breaks to live in London and Los Angeles), and went on to complete her honors in Nutritional Neuroscience. This background in research has equipped Natalie to pick apart research articles related to her Endometriosis treatment and management. While she was studying, she worked in marketing and modeling - very different worlds! Natalie's passion for marketing led to the creation of her own brand consultancy: MisSocial. She uses her background in psychology to understand human behaviour,  and her experience in the fashion industry to best serve her clients.

Even though Natalie grew up on the sunny Australian coast, she is really enjoying living in New York City with her lovely, supportive boyfriend, and adorable bunny - Merky. "Life is a bit of an adventure, made harder by my endometriosis and adenomyosis. I struggled for many years with my diagnosis, and have now come to a place where I try not to let it define me"  says Natalie. 

Follow her journey on IG @natalie_archer



Executive Board Member

Jillian Schurr recently graduated from law school and is about to begin her career as an attorney. The same journey that led her to law school, brought her to The Endometriosis Coalition. After completing her bachelor’s degree in human biology, she began her career in clinical research while working towards a master’s degree in public health. During her time as an investigator in the public health sector, Jillian was diagnosed with Endometriosis.

Jillian is originally from Michigan, previously lived in Texas and Indiana, but it is now Chicago that she calls home. She enjoys reading, catching up with friends, and spending time with her dog Adeline. Her personality consists of the perfect mixture of persistence and compassion that drives her to help others combat the obstacles they may face, whether it be in the public health or non-profit sector.

Follow Jillian on ig @schurr_jillian



director of communications

Meg Connolly has been working as a digital and social media professional for 7 years. Working in the field has given her a true understanding and drive to use social media for awareness of endometriosis and proper treatment.  In fact, the tool that brought Meg to The Endometriosis Coalition and to many of her endo sisters was Instagram.


While Meg is from the heart of New York, she currently resides in Miami for the majority of the year. Many call her a young ‘snowbird.’ She enjoys managing her dog’s Instagram account: @CeiliThePuppy, real estate, interior design, and spending time with the people she loves, and hopes to continue inspire women to learn about endometriosis and seek proper treatment.


Follow her journey on IG: @MegConnolly